HOME   ARCHIVE   GALLERY   SHOP   ABOUT US      
 

 
SALFORD `YOUNG’ DEMENTIA SUFFERERS LEFT IN LURCH BY AUTHORITIES
 

Star date: 10th October 2016

WHILE £MILLIONS POURED INTO DEMENTIA, OTHERS OUT IN COLD

"We're left with nowhere to go, no roads to turn down and it's a lonely, lonely place..."

On Saturday night, twenty people went on a Dementia Walk that raised around £200 specifically towards research at Salford University for people suffering with Moderate to Mild Cognitive Impairment (MCI), or `very young dementia' as it's known.

While £millions are being poured into the treatment of older people's dementia, and rightly so, MCI sufferers are being completely ignored, says the Walk's organiser and MCI sufferer, Gill Whiteley... "They just tell you `It's your fault' and leave you high and dry" she says.

Full details here...


Today is World Mental Health Day and last Saturday night twenty brave souls went on a three hour Dementia Walk through Weaste Cemetery to raise around £200 for research into the illness – even though £millions are being poured into the
Salford Memory Assessment and Treatment Service, or MATS.

So why was it necessary on a cold, dark night to have a torch-lit procession to raise what is peanuts against the total budget in the city for dementia care? Indeed, health money is the only funding in town at the moment...

"I have to question where that money has gone because they're not making the process from diagnosis to treatment any easier" insists Gill Whiteley, who organised the walk

"Where is that money going?" she asks "Is it painting fences, paying for new lighting? It's not going on the patients that need it."

Indeed, a Salford Clinical Commissioning Group (CCG) report notes that some MATS money is being spent on "refurbishment of premises", as well as `post-diagnostic support offered to patients and carers, relationships with GPs and other services...'

It matters to Gill because she herself has Moderate to Mild Cognitive Impairment, or MCI, which is a condition involving problems with day-to-day memory amongst other things.

"We class it as very young dementia" she explains "I was diagnosed with it 18 months ago and there's no help given or offered, nor advice. We're left with nowhere to go, no roads to turn down and it's a lonely, lonely place.

"They come to your house, they do the tests, you go through all the rigmarole, MRIs and all the scans, then they come and tell you `It's only MCI, it's not really dementia and it's all your own fault because it's down to your lifestyle choices'" she adds "I question that. Sometimes you're a victim of circumstance, sometimes you're beaten around the head; how can you be responsible for that and how can they say it's your lifestyle choice? It isn't.

"It's something that's affected you, that you were unaware of" she says "But they just leave you high and dry with `It's your own fault' and walk away, and don't contact you ever, ever again."

It's something that was picked up in the last Quality Care Commission (QCC) report on Salford's care. While praising changes and improvements to dementia care services, the report notes that "We were told it was difficult obtaining assessments and the right assessment for people with lower level needs. The result could be people disengaging or not getting the support they needed to avoid crisis..."

Gill is fighting to change that. She herself knows of 62 women in Salford, aged fifty to sixty years old, who have MCI and have, she says, had no support.

"They don't know what to do, the doctors just ply them with anti-depressants because they are depressed because they are not getting the help, and that masks further development of either dementia or Alzheimers" she explains.

Through her endeavours, Gill is going to be a guinea pig at the Salford Institute for Dementia at Salford University, while also becoming an associate of the unit.

"It's a little known cause in Salford that doesn't get a lot of publicity, so all the money raised today will go to them, specific for Salford – for Moderate to Mild Cognitive Impairment research" she says "This is the second year we've done the Walk and it's worth it for the cause..."

Amongst those down at Weaste Cemetery on Saturday was Gill's daughter, Tonie, who was looking after cars and guiding people along the route... "I'm here to support my mum" she said "It's a brilliant cause because it's looking to find a cure for dementia, and every little donation helps."

The QCC report on Salford's health care notes that "the prevalence of...dementia...is significantly higher than the England average". As funding is thrown, quite rightly, at severe dementia care, MCI seems to have lost out completely. Hopefully attitudes will change...


* The Salford Star contacted the Salford Memory Assessment and Treatment Service for a response but no-one returned our call 

To donate to Salford University's Institute for Dementia giving page – click here

For more information see Gills Walk for Dementia Facebook event page - click here

And for more information and loads of research documents join the (closed) Facebook group For People and Their Families Living With Dementia – click here

Please enter your comment below:
 
 
 
SLADS
Salford Live Events
Salford Star contact
Salford Star
Salford Star print
Deli Lama
advertisement
 
Contact us
phone: 07957 982960
Facebook       Twitter
 
 
Recent comments
article: UNISON ACCUSES SALFORD COUNCIL OF LYING TO JUSTIFY SHUTTING DISABLED KIDS HOME
Who can you trust these days. The councillors elected by the people should be, transparent ask questions and research into the ca... [more]
article: UNISON ACCUSES SALFORD COUNCIL OF LYING TO JUSTIFY SHUTTING DISABLED KIDS HOME
So they're doing and saying exactly what they said when The Grange was used for children fir respite. It's under used,it's not vis... [more]
article: UNISON ACCUSES SALFORD COUNCIL OF LYING TO JUSTIFY SHUTTING DISABLED KIDS HOME
I'm sure some behind closed doors council meeting went something like this. "I know, why don't we close down all the services for ... [more]
article: UNISON ACCUSES SALFORD COUNCIL OF LYING TO JUSTIFY SHUTTING DISABLED KIDS HOME
Im not good with figures. But here goes.25 disabled children are being cared for outside the city. Say it costs £500 per child,per... [more]
article: UNISON ACCUSES SALFORD COUNCIL OF LYING TO JUSTIFY SHUTTING DISABLED KIDS HOME
My last comment should have said £600.000... [more]
 
 
 
 
 
Days
Hours
Minutes
Seconds
 
 
 

Donate

Help the Salford Star...

all donations welcome

 
 

More articles...

SALFORD COUNCIL SET TO BORROW £25MILLION TO MAKE TOWER BLOCKS FIRE SAFE

Star date: 16th August 2017

£25MILLION FOR NINE PENDLETON BLOCKS AS PUBLIC MEETING CALLED ON FIRE SAFETY

Salford City Council is set to borrow £25million in order to sort its nine Pendleton high rises, after they failed consecutive Government fire safety tests. Who ultimately pays for the work, a Council report states, is "likely to be the subject of dispute", although it believes that Pendleton Together is liable.

Meanwhile a public meeting for residents will take place next Tuesday, 22nd August at Salford Arts Theatre, with speakers from the Justice4Grenfell Campaign, Salford City UNISON and the Fire Brigades Union.

Full details here...

UNISON ACCUSES SALFORD COUNCIL OF LYING TO JUSTIFY SHUTTING DISABLED KIDS HOME

Star date: 15th August 2017

'INACCURACIES' AND 'LIES' IN COUNCIL ATTEMPT TO SHUT THE GRANGE – AS STRIKE BALLOT LOOMS

Next week, Salford City Mayor, Paul Dennett, will make a decision on whether or not to shut The Grange, Salford's only residential care home for disabled children.

The Council report recommending the closure has been slated in new counter reports from both the families of children at The Grange and Salford UNISON, which accuses the Council of 'inaccuracies', including over unfilled places... "The so-called lack of demand for The Grange is a lie to justify a cut" it states. The report adds that UNISON members "are willing to consider industrial action in defence of their jobs".

Full details here...

NEW SALFORD COUNCIL STADIUM LOAN WILL TAKE TOTAL TO ALMOST £25MILLION

Star date: 14th August 2017

SALFORD COUNCIL TO HAND ANOTHER £632,000 LOAN TO AJ BELL STADIUM

This week, cash-strapped Salford City Council is set to agree another loan of 'up to' £632,500 for its City of Salford Community Stadium, branded the AJ Bell Stadium.

This will take the current total amount of Council loans for the Stadium - which made another huge loss last year and has net liabilities of over £7million - to almost £25million.

Full details here...

YOUNG SALFORD PEOPLE MAKE NUJ FILM ON REPORTING POVERTY

Star date: 13th August 2017

POVERTY REPORTING NEEDS THE WHOLE PICTURE

Young film makers from the Reporters' Academy in Salford have made a short film about reporting poverty, aimed at journalists who jump on the poverty porn bandwagon.

A variety of people are interviewed in the film about their experiences, urging journalists to have the whole picture on poverty before reporting crap.

Full details here...

SALFORD GROUPS WANTED TO ORGANISE HERITAGE OPEN DAY EVENTS

Star date: 13th August 2017

'ALL OUR STORIES' WANTED FOR HERITAGE OPEN DAYS

Heritage Open Days is the largest grass roots celebration of history and culture in the UK, and takes place between 7th and 10th September, with open days all over the city, from Ordsall Hall to Agecroft Cemetery.

The theme this year is All Our Stories, and organisers are keen for communities to organise new events, which could be walks, talks, poetry readings, or raising awareness of a local building that needs restoring, or maybe saved from demolition.

Full details here...

 



written and produced by Salfordians for Salfordians
with attitude and love xxx