HOME   ARCHIVE   GALLERY   SHOP   ABOUT US      
 

 
SALFORD COUPLE URGE PEOPLE TO INVEST IN ME
 

Star date: 6th November 2016

IN FOR M.E., IN FOR M.E...

M.E., or Myalgic Encephalomyelitis, is a modern epidemic affecting around 250,000 people in the UK, yet a lack of research means there is little medical help for patients. However, Karen Morris and Stu Nimmo are doing their best to change it.

Karen, an M.E. sufferer, runs a local support group, while partner Stu is constantly doing runs to fundraise for the biomedical research charity, Invest in M.E. Research. Next stop is Machu Picchu in Peru.

Full details here...


Invest in ME Research Invest in ME Research
click image to enlarge

M.E., or Myalgic Encephalomyelitis, is an illness affecting millions of people worldwide, and can cause headaches, hormonal imbalance, immunological problems, muscle weakness, intense pain, neurological and cognitive problems, and sleep problems. It's estimated to be twice as common as MS, with 250,000 people in the UK thought to have the condition...

"In fact the number is ever-growing in this modern epidemic" explains Karen Morris, who has severe M.E. "Yet a lack of biomedical research means there is no known cause or cure, so there's very little, if any, medical help or care for patients. 

"The short amount of money that is given to research tends to focus controversially on psychology, a fact that M.E. patients at large have been campaigning about for decades" she adds.

Karen, a Salfordian, runs a Greater Manchester support group based in Salford and Trafford*, and has created a national feedback survey for patients with M.E. (CFS) via Healthwatch Trafford.**

Meawhile, her partner Stu Nimmo, who works in Salford, runs in loads of events to raise funds for a small unknown biomedical research charity, Invest in ME Research (IiME), which consists of unpaid volunteers who do important research work nationally, run training events for doctors and have set up a global research network.

Stu has taken part in the Great Manchester Run, the Salford 10k and the Manchester Half Marathon, helping to raise over £700. Next up is a sponsored trek to Machu Picchu in Peru, followed by a whole list of running events next year.

Now the couple are looking for people to run alongside Stu as part of an Invest in ME team, or who simply want to donate to the charity.

For further details see Stu's Facebook page – click here

To donate see the Just Giving page – click here


To read more about the Invest in ME Research charity – click here


*To read more about Karen's support group – click here

**To see more about the Healthwatch M.E. Survey – click here

Karen Morris wrote
at 1:51:51 AM on Sunday, March 19, 2017
HEALTHWATCH ME (CFS) SURVEY 17 MARCH 2017 UK-wide report out today after 2 year wait. This was a patient feedback survey set up for the whole of England in April 2015 to improve services for patients with ME (more controversially called CFS). Now this report is out, what will happen to patients and services? http://healthwatchtrafford.co.uk/about-us/our-reports/ Response below from main contributor and local ME patient. "I am extremely grateful for Healthwatch Trafford agreeing to do a survey, and for it to include whole of England (now UK). I am also grateful for the ongoing support from organisations such as The Patient's Association, Thyroid UK, 25% ME Group, Dr Speight (Tymes Trust), Invest in ME Research and the ME Association. I was very impressed to see Healthwatch Trafford recently set up a similar survey for Fibromyalgia, which is a condition that often overlaps ME (more controversially called CFS). There have of course been some problems with the ME (CFS) survey: the time delay of two years, the use of two psychologists for a Neurological condition, and the fact that it may be used for academic research by these psychologists; the title 'Tired of Explaining' ME is not tiredness, but debilitating fatigue with other symptoms e.g. PEM, frequent prolonged infections (Canadian Consensus); only forwarding information upon request to other local HW and CCGs. However, from the start both myself and Healthwatch have been surrounded by an overwhelming amount of problems and politics which I did not expect. This has taken over my life for the past two years, having an impact on my own health and support. This includes people trying to speak on behalf of others, the under representation of severe patients and children, selected 'reps' (also who I feel may not fit the criteria of ME or typical demographic e.g. gender and age), secret meetings, lack of information and transparency, copycatting and general disrespect for the individual rights of patients under the NHS Constitution. It has also highlighted general problems with the post-Francis Report system for all patients (not just those with ME). These include the process of giving feedback and it being taken seriously; The regulation and accountability of the NHS at every level; Complaints being ignored and/or denied; Being able to speak up politely with evidence, without the risk of being viewed and treated negatively and feeling 'blacklisted'; Local Government; and the regulation of the third sector, amongst other problems. I have sent my concerns and evidence to the media and government in the hope that this will one day change as patient's lives continue to be at risk, including children. Lessons have not been fully learnt from Mid-Staffordshire and subsequent events. That said, I believe that patients with ME (and other conditions) should keep giving polite feedback and evidence direct to watchdogs and similar organisations if we want positive change to happen. We are a very large group of people with a valuable voice. Thank you to everyone who participated." Karen Morris ME CFS Manchester www.memanchester.wordpress.com www.facebook.com/groups/memanchester
 
Please enter your comment below:
 
 
 
Manchester Conservative Party Conference Protest Photos
Salford Star contact
Salford Star
Salford Star print
Deli Lama
advertisement
 
Contact us
phone: 07957 982960
Facebook       Twitter
 
 
Recent comments
article: SWINTON LIONS REVEAL NEW ‘MANCHESTER’ LOGO
This all comes down to ONE thing! Salford is seen as being a negative aspect with regard to publicity and promotion. Manchester is... [more]
article: NEW SALFORD STAR HOODIES AND SWEATSHIRTS AVAILABLE
They are pretty impressive. I know as I have felt the texture and admired the boldness of the logo. If you are proud of Salford an... [more]
article: SALFORD STAR ENTERTAINMENT AWARDS 2017 OPEN FOR NOMINATIONS
I'd like to nominate JB BARRINGTON A performer who I've seen numerous times over the last few years And he never fails to entert... [more]
article: AGECROFT WALK RAISES MONEY FOR SALFORD DEMENTIA CHAMPIONS
Well done Gill and gang. What a great cause. You all did amazing.... [more]
article: SALFORD BROWN COW PUB DEVELOPERS TO AVOID £100,000S IN PLANNING PAYMENTS
Apparently there has been a Brown Cow pub in Winton since the 17th Century.Another bit of local heritage bites the dust. Still - t... [more]
 
 
 
 
 
Days
Hours
Minutes
Seconds
 
 
 

Donate

Help the Salford Star...

all donations welcome

 
 

More articles...

ZOMBIES INVADE ECCLES FOR SALFORD CREDIT UNION AWARENESS WEEK

Star date: 16th October 2017

ZOMBIES GIVE OUT THE MESSAGE: 'DON'T GET SPOOKED BY RIP OFF LENDERS'

A zombie flashmob invaded Church Street in Eccles at the weekend to give out the message: 'Don't get spooked by rip off lenders - get local'.

The event was to kick off Greater Manchester Credit Union Awareness Week and to point people towards using the not-for-profit Salford Credit Union, rather than payday and doorstep lenders, and expensive credit cards.

Full details here...

NEW SALFORD STAR HOODIES AND SWEATSHIRTS AVAILABLE

Star date: 15th October 2017

BRAND NEW SALFORD STAR HOODIES AND SWEATSHIRTS IN STOCK

The Salford Star's new range of black hoodies, and black or white sweatshirts, are now available, priced £25 and £20, with every penny of profit going towards keeping the Salford Star alive and kicking.

Get one now!

Full details here...

GREG MURRAY AND THE SEVEN WONDERS AT THE SALFORD ARMS

Star date: 15th October 2017

UPLIFTING LIVE MUSIC AT ITS BEST

Greg Murray and the Seven Wonders
Saturday 21st October 10pm
Salford Arms free

Eight piece rock, alt, folk combo, Greg Murray and the Seven Wonders, take to the stage at the Salford Arms in a free gig next Saturday, complete with brass section and live tunes that promise a euphoric and uplifting night, as Ian Leslie reports.

Full details here...

THE HAUNTING OF BLAINE MANOR AT KINGS ARMS SALFORD

Star date: 15th October 2017

BLAINE IS BACK WITH A BANG

The Haunting of Blaine Manor
Monday 23rd – Sunday 29th October
The King's Arms £10/£8

As a preview for Halloween, check out eerie at its finest in Joe O'Byrne's The Haunting of Blaine Manor at the Kings Arms, a "horror masterclass", as Ian Leslie reports.

Full details here...

AGECROFT WALK RAISES MONEY FOR SALFORD DEMENTIA CHAMPIONS

Star date: 15th October 2017

GILL'S WALK FOR DEMENTIA RAISES HUNDREDS OF POUNDS FOR CHAMPIONS

Last night over two dozen people went on the now annual Gill's Walk For Dementia which took place at Agecroft Cemetery. The group raised hundreds of pounds for Salford Dementia Champions, volunteers who try and improve the delivery of dementia services in the city.

Full details here...

 



written and produced by Salfordians for Salfordians
with attitude and love xxx